
Autism and the big picture. It is a vastly sensitive subject, and one that should not be taken so lightly and with that being said, it does not mean the end of the world for you or your child. There are so many horror stories out there. And the sad fact is: that there is much reality in the horror, but also much sensationalism and a vast majority of misunderstandings and stereotyping. And yet all of that, is in fact understandable. Much of what is known by the vast majority about Autism comes from movies like Rain Man and Mercury Rising. And thus, with only the extreme cases out there fictionalized with a certain amount of creative license, there is a large amount of pain connected to the word “Autism” when you hear that your child has been slapped with that label.
Imagine on the routine two year check up for that perfect and beautiful child of yours, the doctor pulls you aside saying he’s got something to tell you, your child has something “wrong” with them, or worse yet, he had no answers for the strange symptoms/characteristics your child is exhibiting. If you’re unsure of what I’m talking about, then I’m right there with you, I was ignorant to the subject of autism at one time. I went three decades knowing practically nothing about it, although admittedly I am still no where near the expert, nor am I a doctor of any sort. All I know, comes from personal experience and various written resources. I have read much on the subject in the past two years, since my oldest son is within the spectrum.
Autism, Asperger’s Syndrome, High-functioning Autism, Autism Spectrum Disorders (ASD) or Autism Spectrum Conditions (ASC) and Pervasive developmental disorder not otherwise specified (PDD-NOS or plain PDD); however you title or define this disorder, disease, evolution (or my favorite, the extreme male brain) of the human mind predominately found in males is on the rise, or is it? My own theory, from reading so many different accounts is that Autism is status in quo, the severe are as severe as they always were, and yet those not so severe and found in the Spectrum of Autism are indeed on the rise, or are they? Is it that we are seeing more and more of this epidemic, or that we are much more capable in recognizing certain behaviors attributed to their, we’ll go with my favorite, extreme minds.
In addition, there’s the other side of the equation, while I fully believe there are many cases within the spectrum out there, my own son included, people tend to jump on the band wagon and lump kids who do not exactly fit the criteria in the spectrum for a rainbow of reasons: they want the financial support, it’s easier than dealing with the diagnosis of oppositional defiant disorder . . . basically translated, they choose to be a brat, it’s the latest fad, they don’t know what else it could be. The same way, kids, in the spectrum have been lumped into various other diagnoses over the years. And for these, and a slew of other reasons, over the years there has been numerous forms of backlash to the problem. Likewise, when I was diagnosed with A.D.D. after having it for 17 years, many people believed and still do believe that A.D.D. doesn’t exist, that it’s merely an excuse. I was medicated for a time and I can tell you the medication worked, I was indeed A.D.D. and still am, although I had already spent 17 years unknowingly learning to deal with my specialness and or own extreme mind and therefore took myself off the medication because I already knew how to cope with my lack of single-minded focus.
So it’s out there, Autism is here and most likely here to stay. There are dietary restrictions that can be of help, I know Dean has far fewer episodes when he doesn’t drink a lot of milk. And there is always talk of finding a cure, talk that some find insulting, mostly I think because no one wants to admit that anything could ever be wrong with their kid, and believe me, as a father I understand that, and if those who didn’t had half a brain, well, they would too. Although again, on the other hand, I look at Dean, and minus the extra difficulties his extreme mind has to cope with, I cannot legitimately see anything wrong with him, there truly is nothing to “cure”. Dean is an exceptionally bright individual, remarkably observant (sometimes a little too observant), and one of the most caring and compassionate kids I have ever had the pleasure of meeting.
Wha? Autism kids can feel? And again, herein lies the main problem with Autism, the need for a spectrum, there isn’t one fit to the extreme mind as there are certain aspects that are alike within most cases. Many kids in the spectrum are high functioning, for them, autism is not a debilitating disorder. They can actually function quite well in society: in some areas better and in other areas not as well. While Dean is very loving and is completely capable of showing true and genuine emotions, he does not always see certain social cues. However, this is not to say that he cannot see when my wife and I are distraught or happy, nor does it mean he cannot feel those things himself. Sarcasm, and figurative language are lost on my little man, among various other language hurdles, I remember how proud we were of Dean when he finally started to grasp the correct use of pronouns.
Dean also needs to be shown the way at times. He learns best when things are modeled for him. When there is structure. When we mess with his schedule, something we never do intentionally, yet life happens, he can and will often melt down. And in that area, he doesn’t always deal with transitions well. While my mind is always off in a million directions, Dean’s mind is single-minded, he grasps onto things and isn’t always capable of letting go as easily as someone else would. Coupled with certain other aspects Dean has to deal with within the Spectrum, his melt-downs do not seem as strange as an outsider might imagine.
Consider a world where you were completely focused on one thing and yet could take in the whole world at once. Where you didn’t compartmentalized all the different sounds you always hear until they became an unnoticeable buzzing in your ears, you hear the typing on the keyboard, the buzzing of the air-conditioner, the various voices in the background in various conversations, the clutter of your co-workers opening up boxes and shuffling papers, the bright lights and constant movement around you and so on, and then consider as you are in the epitome of your focus (I know you parents get this, when you are deep in your thing and your kids always chose that moment to interrupt or anyone who would dare stop you in the middle of a favorite activity, you wouldn’t exactly be cheery about the distraction. Dads, when wifey asks you to take out the trash right in the middle of a game, it makes you kind of pissy, huh.), so imagine again you’re doing your thing while already having constant distractions, and someone stops you dead in your tracks, no warning, just stop and move along, even as an adult, most of you would throw a tantrum.
Now kids being kids, once a kid feels that mental state building, it is hard to stop that feeling freight-train of emotion. Once the tantrum starts, there are times it must simply run its course. Anyone knows, trying to talk to a kid mid-tantrum or even a spouse for that matter is not easy. Try to get someone in a truly emotional state to focus on reason, logic or anything that would be considered constructive when filled to overflowing with emotions. So trying to talk to a child, especially one in the spectrum, at that point could be considered useless. So, does that mean that you should never interrupt said tantrum and calm your child, by all means, no. It merely means that if you try to correct the child while in this extreme state, you won’t be getting anything constructive done and will usually heighten their emotions. The first step is to calm them down. There are various tactics to do so, in my opinion, asking them to calm down is the first and foremost. I usually point to Dean’s eyes and then draw those eyes with my fingers and my voice to my own eyes and ask him gently to calm down. Albeit, the first time, I wanted Dean to calm down, I held him over my shoulder upside down. That may sound funny and it kind of was, but the purpose was in the initial point of this paragraph, kids have a hard time focusing on more than one thing at a time, so all Dean could focus on was being upside down and calmed down rather quickly then started laughing. He also learned he could calm himself down, something I used positive reinforcement to encourage.
As most parents, hopefully, know: encouragement is a wonderful tool. Children are always looking for their parent’s attention and approval, and when they don’t get that attention, they will often seek negative attention. This attention is then ofttimes sought with undesirable behaviors: enter behavior modification. Sounds like something out of the CIA’s handbook, yet it’s much more innocent than that. It simply means instead of yelling at your kids over and over again, to give them a positive replacement behavior, something that is extremely helpful to a kid with autism who doesn’t understand what he is doing wrong. Say your child wants a toy out of their reach and sits there screaming for it until you or one of his siblings gets it for him. Instead of reinforcing the bad behavior, you can give him a replacement behavior: like modeling for him a positive action such as signing for the toy or asking for it, that’s going to give him positive reinforcement by obtaining the toy and not have you screaming like a banshee at him as he screams like a tortured child at you. Now he has a functional and acceptable way to interact with society and communicate his needs.
My wife has been ever vigilant with Dean and I have tried to help him as much as I can as well. And to that end, Dean has developed by leaps and bounds: I haven’t seen him have much stereotypy (repetitive movement) behavior of late; he still restricts his activities (gets preoccupied with single shows, toys, games) yet he can wait his turn and will even leave off his obsession with that particular item or object of his affection for another activity; he still has compulsive behavior (lining up objects or stacking them), but it does not rule his life anymore; he now sleeps through the night; he still loves his rituals, but can now cope with variances to his day; still has moments of self-injury when he’ll pick his fingers till they bleed but much less and will on occasion stop before we remind him; his motor skills have vastly improved as well as his coordination (he is a master of Mario Kart). And where before, he needed the Speech pathologist and other treatment interventions, his IEP now puts him at the top of his class and says he is completely ready for kindergarten. He has come a far way.
And therein lies the entire point of my ramblings, if you have or know a child in the spectrum, don’t give up and lose heart in the midst of all the horror stories and by all means don’t become bitter, give your still wonderful creation all the love and encouragement and understanding they’ll need while learning to cope with the things they lack and develop the advantages they have. And while early intervention can be a tremendous help, no one treatment method has been found to successfully improve communication and other skills in all individuals who have autism, save love and persistence. There is so much more to say on this subject, and luckily 100’s of specialized books to help.
On a side note, to anyone who doesn’t have or know an autistic child, if you ever encounter a child in the middle of a meltdown, it of course can be a truly uncomfortable situation for you and other onlookers alike, although as any parent knows, it is the most uncomfortable for the parent of a child throwing a tantrum in a public place. Still, if this situation occurs, please be understanding, don’t just assume what you don’t know, because, you don’t know all the variables, you don’t know if that child is utterly over-stimulated and is desperately trying to maintain. Either way, there is no reason to exacerbate things by harsh tones or dirty looks to a parent and child already out of sorts. And definitely don’t slap the kid in question, Mr Walmart man. Seriously.

Digg it
That is all